Author ORCID Identifier
M. Courtney Hughes: https://orcid.org/0000-0002-8699-5701
Erin Vernon: https://orcid.org/0000-0002-9094-3226
Chinenye Egwuonwu: https://orcid.org/0000-0002-9905-9306
Document Type
Article
Publication Title
PEC Innovation
Abstract
Objective
To systematically review research analyzing the effectiveness of decision aids for end-of-life care, including how researchers specifically measure decision aid success.Methods
We conducted a systematic review synthesizing quantitative, qualitative, and mixed-methods study results using Preferred Reporting Items for Systematic Reviews and Meta-Analysis guidelines. Four databases were searched through February 18, 2023. Inclusion criteria required articles to evaluate end-of-life care decision aids. The review is registered under PROSPERO (#CRD42023408449).Results
A total of 715 articles were initially identified, with 43 meeting the inclusion criteria. Outcome measures identified included decisional conflict, less aggressive care desired, knowledge improvements, communication improvements, tool satisfaction, patient anxiety and well-being, and less aggressive care action completed. The majority of studies reported positive outcomes especially when the decision aid development included International Patient Decision Aid Standards.Conclusion
Research examining end of life care decision aid use consistently reports positive outcomes.Innovation
This review presents data that can guide the next generation of decision aids for end-of-life care, namely using the International Patient Decision Aid Standards in developing tools and showing which tools are effective for helping to prevent the unnecessary suffering that can result when patients' dying preferences are unknown.DOI
https://doi.org/10.1016/j.pecinn.2024.100273
Publication Date
2024
Recommended Citation
Hughes, M. C., Vernon, E., Egwuonwu, C., & Afolabi, O. (2024). Measuring decision aid effectiveness for end-of-life care: A systematic review. PEC innovation, 100273.
Original Citation
Hughes, M. C., Vernon, E., Egwuonwu, C., & Afolabi, O. (2024). Measuring decision aid effectiveness for end-of-life care: A systematic review. PEC innovation, 100273.
Department
School of Health Studies
