Investigation of the needs of and services offered to adults with craniofacial anomalies and/or cleft lip and palate
Seaver, Earl J., III
M.A. (Master of Arts)
Department of Communicative Disorders
Cleft lipages; Skull--Abnormalities; Cleft palate
Adults with congenital craniofacial anomalies were surveyed in an attempt to determine their histories of treatments, satisfaction with the delivery of services and satisfaction with outcomes of treatments, and their perceived needs for additional services. In addition, craniofacial/cleft palate teams were surveyed regarding the extent of services currently being offered to adults. Five hundred and twelve individuals with craniofacial anomalies and/or cleft lip and palate and two hundred and eight craniofacial/cleft palate teams were sent separate questionnaires. Fifty-three individuals with congenital craniofacial anomalies ranging in age from 17 to 66 years and one hundred and thirty - five craniofacial/cleft palate teams completed the questionnaires. The results suggests that individuals are generally satisfied with the manner in which treatment is provided but are less satisfied with the outcome of these services. Adults generally feel they would benefit from and are interested in further services offered by teams. Professionals responding on behalf of craniofacial/cleft palate teams indicated there are a wide range of services available to adults. However, they felt that the overall effectiveness of these services is somewhat low. Many adults indicated the importance of adult support groups and suggested that craniofacial/cleft palate teams should be actively involved in their formation.
Esguerra, Maria U., "Investigation of the needs of and services offered to adults with craniofacial anomalies and/or cleft lip and palate" (1992). Graduate Research Theses & Dissertations. 3657.
vii, 56 pages
Northern Illinois University
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Includes bibliographical references (pages 46-48)